Comments for Dr. Karen Lee's Blog https://drkarenlee.ca An Inside Look at MS Research Tue, 23 May 2017 20:10:29 +0000 hourly 1 https://wordpress.org/?v=4.6.6 Comment on First drug for treatment of Progressive MS Approved by the FDA by drkarenlee https://drkarenlee.ca/first-drug-for-treatment-of-progressive-ms-approved-by-the-fda/#comment-489 Tue, 23 May 2017 20:10:29 +0000 https://drkarenlee.ca/?p=1573#comment-489 Hi Brennon,

Thanks for your comment. We understand and recognize that many people affected by MS are awaiting a decision around this treatment. This news of the FDA approval brings hope as the first treatment approved in the world for progressive forms of MS. Having said that, an application to Health Canada has been submitted and we will provide an update as soon as we know the outcome.

Dr. K

]]>
Comment on First drug for treatment of Progressive MS Approved by the FDA by drkarenlee https://drkarenlee.ca/first-drug-for-treatment-of-progressive-ms-approved-by-the-fda/#comment-488 Tue, 23 May 2017 20:09:22 +0000 https://drkarenlee.ca/?p=1573#comment-488 Hi Ferne,

Thanks for your comment.

The MS Society offers a variety of programs and services to help people affected by multiple sclerosis as well as their families effectively manage and cope with the disease. Connect with an MS navigator by calling 1-844-859-6789 or email msnavigators@mssociety.ca.

Dr. K

]]>
Comment on First drug for treatment of Progressive MS Approved by the FDA by drkarenlee https://drkarenlee.ca/first-drug-for-treatment-of-progressive-ms-approved-by-the-fda/#comment-487 Tue, 23 May 2017 20:07:38 +0000 https://drkarenlee.ca/?p=1573#comment-487 Hi Julianna,
Thanks for your comment. At the moment Ocrevus (ocrelizumab) is not approved in Canada. The MS Society is closely monitoring their decision and will provide an update on the blog and website as soon as we hear more. For additional information on ocrelizumab, visit our treatments in development page. Here, you will find information on ocrelizumab relating to both RRMS and progressive MS. We also have an FAQ on ocrelizumab which you can find here.
Dr. K

]]>
Comment on About by drkarenlee https://drkarenlee.ca/about/#comment-486 Tue, 23 May 2017 20:06:22 +0000 http://endms.wordpress.com/?page_id=1#comment-486 Hi Modi,
Thanks for your question. There is a list of treatments listed on our website that help manage symptoms associated with MS. One of them is called Fampyra, which is indicated for symptomatic improvement of walking in MS patients with an EDSS score of 3.5-7. I would encourage you to discuss these options with your health-care team. Currently, there are no disease-modifying treatments approved for the treatment of SPMS, however an application to Health Canada has been submitted for ocrelizumab for primary progressive MS, for which we hope to hear a decision soon. Additionally, a drug called siponimod has shown benefits in people with secondary progression MS, which is currently in a phase III clinical trial. We hope this helps to answer your questions.
Dr. K

]]>
Comment on Multi-million dollar initiative launched to study the progression of MS by drkarenlee https://drkarenlee.ca/multi-million-dollar-initiative-launched-to-study-the-progression-of-ms/#comment-485 Tue, 23 May 2017 20:03:05 +0000 https://drkarenlee.ca/?p=1567#comment-485 Hi Diane,
Thank you for your comment and questions regarding the MS Progression Cohort.

At the moment we have invited researchers to apply for funding to design and launch the cohort. In their application they will be expected to define in detail the criteria that will be used to identify and recruit participants to the cohort. These applications are subject to review, and once a team is selected they will begin planning the cohort and will be looking for participants. We appreciate your comment about rural communities and will ensure that news about the cohort is communicated through as many neurologists and clinics as possible and as quickly as possible. Stay tuned for further updates on recruitment.
Dr. K

]]>
Comment on Getting personal with a promising treatment approach to MS by drkarenlee https://drkarenlee.ca/getting-personal-with-a-promising-treatment-approach-to-ms/#comment-484 Tue, 23 May 2017 20:00:29 +0000 https://drkarenlee.ca/?p=1430#comment-484 Hi Ferne,

We appreciate your comment.

The MS Society offers a variety of programs and services to help people affected by multiple sclerosis effectively manage and cope with the disease. Connect with an MS navigator by calling 1-844-859-6789 or email msnavigators@mssociety.ca.

-Dr. K

]]>
Comment on Getting personal with a promising treatment approach to MS by ferne o'neil https://drkarenlee.ca/getting-personal-with-a-promising-treatment-approach-to-ms/#comment-482 Mon, 08 May 2017 03:48:52 +0000 https://drkarenlee.ca/?p=1430#comment-482 I have been watching for all new MS discoveries.
I am in hospial again nurses are treaging me as if I am supid. There is another MS patoent here. Along wkth aged I want to get out of fhis bug infstive, I am on aubagio, and tbis must stop ,my doctors cyclearound and no one has doneanytking to help me and thank father inheaven that my mother passed April 982017.

]]>
Comment on Multi-million dollar initiative launched to study the progression of MS by Diane https://drkarenlee.ca/multi-million-dollar-initiative-launched-to-study-the-progression-of-ms/#comment-480 Thu, 04 May 2017 19:36:53 +0000 https://drkarenlee.ca/?p=1567#comment-480 This study does sound like a great start. How will people with progressive MS be identified for the purposes of this study? I live in rural Canada where news travels slowly and there is only one neurologist. I’ve had PPMS (diagnosed) for 15 years. Have just started to lose things I used to take for granted. Grief is part of the process I hear. The process of letting go of one darn thing after another.

]]>
Comment on About by Modi https://drkarenlee.ca/about/#comment-476 Sat, 22 Apr 2017 16:27:48 +0000 http://endms.wordpress.com/?page_id=1#comment-476 Hi Dr. Karen
I’m 54 years old SPMS patient and I can’t walk since January 2008 and I use wheelchair since then.
I’m wondering if there’s any drug that could help me walking very soon?
I’m using Tysabri right now which is very good, and all what I need is walking.
Thank you so much

]]>
Comment on First drug for treatment of Progressive MS Approved by the FDA by julianna ducey https://drkarenlee.ca/first-drug-for-treatment-of-progressive-ms-approved-by-the-fda/#comment-475 Thu, 20 Apr 2017 19:00:00 +0000 https://drkarenlee.ca/?p=1573#comment-475 regarding drug OCRELIZUMAB please send more info, is it available in Ontario Canada. please and thank you

The Food and Drug Administration approved on Tuesday the first drug to treat a severe form of multiple sclerosis, offering hope to patients who previously had no other options to combat a relentless disease that leads to paralysis and cognitive decline.

The federal agency also cleared the drug to treat people with the more common, relapsing form of the disease.

“I think that this is a very big deal,” said Dr. Stephen Hauser, the chairman of the neurology department at the University of California, San Francisco, and leader of the steering committee that oversaw the late-stage clinical trials of the drug, ocrelizumab. “The magnitude of the benefits that we’ve seen with ocrelizumab in all forms of M.S. are really quite stunning.”

The drug, which will be sold under the brand name Ocrevus by Genentech, showed the most notable results in patients with relapsing multiple sclerosis, appearing to halt progression of the disease with few serious side effects. In patients with the more severe form, primary progressive multiple sclerosis, the drug only modestly slowed patients’ decline, but medical experts described it as an important first step.

Continue reading the main story
RELATED COVERAGE

Novartis to Buy Multiple Sclerosis Drug From Glaxo AUG. 21, 2015
Teva Ruling Clears Way for Generic Version of Multiple Sclerosis Drug JUNE 18, 2015

ADVERTISING
An MS Drug Takes a Feisty Approach Aimed at Younger Patients APRIL 3, 2013
RECENT COMMENTS

]]>