Comments for Dr. Karen Lee's Blog https://drkarenlee.ca An Inside Look at MS Research Wed, 05 Jul 2017 13:06:42 +0000 hourly 1 https://wordpress.org/?v=4.6.6 Comment on About by drkarenlee https://drkarenlee.ca/about/#comment-506 Wed, 05 Jul 2017 13:06:42 +0000 http://endms.wordpress.com/?page_id=1#comment-506 Hi Sandra,

Thank you for your comment and your donation to the MS Society. With you support, we continue to advance research to improve the lives of Canadian living with MS.

-Dr. K

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Comment on First drug for treatment of Progressive MS Approved by the FDA by drkarenlee https://drkarenlee.ca/first-drug-for-treatment-of-progressive-ms-approved-by-the-fda/#comment-505 Wed, 05 Jul 2017 12:36:55 +0000 https://drkarenlee.ca/?p=1573#comment-505 Hi Teresa,

Thanks for the question. Biotin is still in the experimental phase as researchers are looking to see if it can improve progressive MS. The treatment is called MD1003. The compound was tested in two phase III clinical trials testing the safety and benefits of MD1003. Both these trials show positive outcomes in disease progression. A large phase III trial is currently underway and will include Canadian sites. It is important to note that the dosage being tested in the clinical trials (300mg/day) is 10,000 times higher than the Health Canada recommended daily intake of 30 µg/day. Also, we currently do not have long-term safety of taking the ultra-high doses of biotin for a prolonged period of time. Check out the link here for more information on MD1003. We continuously update our website for treatments that are in development like MD1003 and also treatments that are approved by Health Canada.

Thanks,

Dr. K

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Comment on First drug for treatment of Progressive MS Approved by the FDA by drkarenlee https://drkarenlee.ca/first-drug-for-treatment-of-progressive-ms-approved-by-the-fda/#comment-504 Wed, 05 Jul 2017 12:28:33 +0000 https://drkarenlee.ca/?p=1573#comment-504 Hi Deb,
Thanks for your question. MS is complicated and requires experts from multi-disciplinary fields such as neurology, immunology, and virology. We are still working to figure out what triggers MS, how it works, what progresses it. To figure out this important information, the MS Society has committed funding to the best researchers in MS in Canada. In addition to the research we fund on an annual basis, we launched a new initiative called MS Society of Canada-Brain Canada- Biogen MS Progression Cohort. This initiative will bring together some of the brightest minds in MS research in Canada looking at how and why progression in MS occurs in the hope to find treatments that will halt and reverse MS.
In reference to your question on MS and Polio vaccine, there are nine studies performed on the polio vaccination and MS and from these studies there was no risk of developing MS and no risk of relapse following the polio vaccine. The most up to date information was recently (June 2017) published here.
Dr. K

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Comment on First drug for treatment of Progressive MS Approved by the FDA by drkarenlee https://drkarenlee.ca/first-drug-for-treatment-of-progressive-ms-approved-by-the-fda/#comment-503 Wed, 05 Jul 2017 12:27:02 +0000 https://drkarenlee.ca/?p=1573#comment-503 Hi Helene,

Thanks for your question. Individuals are encouraged to discuss treatment options with their healthcare team. The MS Society of Canada does not provide a list of clinics in the U.S. who offer ocrelizumab infusions. There are a number of important considerations that one should be mindful of when considering traveling abroad for medical treatments. Click here to read through these considerations in more detail.
Thanks,

Dr. K

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Comment on First drug for treatment of Progressive MS Approved by the FDA by Helene Humphrey https://drkarenlee.ca/first-drug-for-treatment-of-progressive-ms-approved-by-the-fda/#comment-500 Sat, 24 Jun 2017 21:37:30 +0000 https://drkarenlee.ca/?p=1573#comment-500 Dr.K,
Are we able to go to the States for it?

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Comment on First drug for treatment of Progressive MS Approved by the FDA by Deb Dewar https://drkarenlee.ca/first-drug-for-treatment-of-progressive-ms-approved-by-the-fda/#comment-499 Thu, 15 Jun 2017 23:24:45 +0000 https://drkarenlee.ca/?p=1573#comment-499 I have R/R MS and agree with David Oakes!…when will there be a cure!….can the Polio Vacination not be seen as a link to MS?
Why is it taking so long to find a cure for this illness?

Deb Dewa

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Comment on Multi-million dollar initiative launched to study the progression of MS by drkarenlee https://drkarenlee.ca/multi-million-dollar-initiative-launched-to-study-the-progression-of-ms/#comment-494 Thu, 08 Jun 2017 20:24:13 +0000 https://drkarenlee.ca/?p=1567#comment-494 Hi Sharon,
Thanks for your comment and for sharing your story with us. Drugs that are traditionally used for the treatment of cancer, such as chemotherapy, suppress the immune system. There are also immune therapies that harness the fighting qualities of immune cells to combat the cancer cells. Some of these therapies activate T cells, for example, to fight the cancer. Research shows that activation of T cells contributes to demyelination in MS. So, while there is no direct evidence of the consequences of cancer immune therapies in MS, it’s possible that they could activate cells that are involved in MS. We suggest that you discuss any treatment option for any condition with both your health care teams, in order to understand the risks and benefits.
-Dr.K

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Comment on First drug for treatment of Progressive MS Approved by the FDA by Teresa https://drkarenlee.ca/first-drug-for-treatment-of-progressive-ms-approved-by-the-fda/#comment-493 Fri, 02 Jun 2017 17:56:04 +0000 https://drkarenlee.ca/?p=1573#comment-493 I have progressive MS so no meds to assist me, I was able to get 300mg Biotin compound to try and have some little improvement but drug plan will not cover so any idea?

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Comment on MS, fatigue and sleep disorders: putting the matter to bed by Laura Chappell https://drkarenlee.ca/ms-fatigue-and-sleep-disorders-putting-the-matter-to-bed-2/#comment-491 Mon, 29 May 2017 14:08:46 +0000 https://drkarenlee.ca/?p=740#comment-491 i was married when diagnosed, was on avonex and slept allnight now on tecfidera take beneryl at 11:pm to sleep up at 5am and watch tv i am 58 from nj i

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Comment on About by Sandra Sellick https://drkarenlee.ca/about/#comment-490 Tue, 23 May 2017 21:40:44 +0000 http://endms.wordpress.com/?page_id=1#comment-490 Dear Dr. Lee
I was surprised to receive an email from you today regarding the MS walk. In it you expressed regret that I would not be joining the walk this year and asked me to make a donation. I made a donation to the Hewitt’s Harriers team many weeks ago and both my husband and I plan to be in the park on Sunday, Apr. 28 to support our friend Michelle Hewitt, who is a wonderful advocate for MS awareness and services in Kelowna, BC.
Respectfully,
Dr. Sandra Sellick

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