Comments for Dr. Karen Lee's Blog https://drkarenlee.ca An Inside Look at MS Research Sun, 04 Feb 2018 10:42:21 +0000 hourly 1 https://wordpress.org/?v=4.6.10 Comment on ACTRIMS 2018: Cutting Edge Development in MS Research by SANDRA MAE WATTS https://drkarenlee.ca/actrims-2018-cutting-edge-development-in-ms-research/#comment-558 Sun, 04 Feb 2018 10:42:21 +0000 https://drkarenlee.ca/?p=1694#comment-558 A therapy 2 promote remyelination in MS! Since anti lingo 2 was not 100% successful.

Is anything happening on the MS acquired nystagmus front?

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Comment on ACTRIMS 2018: What are some emerging concepts in MS? by Chris Chatten https://drkarenlee.ca/actrims-2018-what-are-some-emerging-concepts-in-ms/#comment-557 Sun, 04 Feb 2018 07:00:14 +0000 https://drkarenlee.ca/?p=1687#comment-557 Hi Dr Lee
Thanks for your response. We went to Moscow with our daughter who had the treatment. Dr Fedorenko has performed roughly 900 transplants, it may be beneficial to google him and the Pirgov hospital for further information. There are blogs on FB with many experiences of people at all stages of MS who have had the treatment, the success rate is high.
It seems that funding would have to come from government as there is no benefit for the pharmaceutical companies to pursue this direction.
Let’s hope things improve for the hundreds of thousands of people suffering.

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Comment on ACTRIMS 2018: What are some emerging concepts in MS? by drkarenlee https://drkarenlee.ca/actrims-2018-what-are-some-emerging-concepts-in-ms/#comment-556 Sat, 03 Feb 2018 17:35:50 +0000 https://drkarenlee.ca/?p=1687#comment-556 Hi Chris,

Thanks for your question and comment. The HSCT is still a hot topic at MS conferences, however, as many of the HSCT trials in MS have been completed and have been effective is slowing or stopping disease progression, the question commonly addressed at the conference is the mechanisms through how this therapy works. The MS Society of Canada and MS Scientific Research Foundation funded a clinical trial involving HSC transplants, led by Drs. Mark Freedman and Harry Atkins from the Ottawa Hospital Research Institute. For more information see Canadian Bone Marrow Transplantation (BMT) Trial. This trial was completed and published in 2016 in Lancet. Due to the serious side effects associated with chemotherapy, only those individuals who had aggressive, highly inflammatory relapsing-remitting MS (RRMS) were part of the trial. As this therapy is only for those with aggressive forms of RRMS, the MS Society of Canada is supporting the MESCAMS (MEsenchymal Stem cell therapy for CAnadian MS patients), a phase II clinical trial. One major factor which distinguishes this study from the previously conducted Canadian bone marrow transplantation (BMT) trial is that participants are not subjected to intensive chemotherapy, which is required prior to BMT to effectively eliminate the diseased immune system. For more information on this clinical trial, check out our website. So Canada is one of the leaders in this area and the MS Society of Canada is proud to support this effort.
-Dr. K

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Comment on ACTRIMS 2018: What are some emerging concepts in MS? by Chris Chatten https://drkarenlee.ca/actrims-2018-what-are-some-emerging-concepts-in-ms/#comment-555 Sat, 03 Feb 2018 17:03:32 +0000 https://drkarenlee.ca/?p=1687#comment-555 I would like to hear more about HSCT, I believe this to be a potential standard of care for MS in the future yet I don’t see much information coming from conferences etc.
Mexico and Russia seem to be leading the field in this area, why are we lagging behind in this field?

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Comment on 2017 revisions to MS diagnostic criteria presented at #MSParis2017 conference by D Johnson https://drkarenlee.ca/2017-revisions-to-ms-diagnostic-criteria-presented-at-msparis2017-conference/#comment-554 Sun, 21 Jan 2018 06:30:55 +0000 https://drkarenlee.ca/?p=1660#comment-554 Thanks for the link to the article.

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Comment on New research finds that stopping treatment may have consequences in people with MS by drkarenlee https://drkarenlee.ca/new-research-finds-that-stopping-treatment-may-have-consequences-in-people-with-ms/#comment-549 Tue, 09 Jan 2018 18:39:23 +0000 https://drkarenlee.ca/?p=1014#comment-549 Hi Susan
I’m sorry to hear about this difficult time for you and your brother. As you mentioned applying for Medicare, I’m assuming you are in the U.S. I would recommend contacting an MS Navigators at the U.S. MS Society (National MS Society) who will be able to better assist you. Connect with an MS navigator by calling 1-800-344-4867 during standard business hours, Monday through Friday or via email at contactusnmss@nmss.org or on Facebook at facebook.com/NavigatorMS.

-Dr. K

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Comment on New research finds that stopping treatment may have consequences in people with MS by Susan Bloodworth https://drkarenlee.ca/new-research-finds-that-stopping-treatment-may-have-consequences-in-people-with-ms/#comment-547 Wed, 03 Jan 2018 01:52:00 +0000 https://drkarenlee.ca/?p=1014#comment-547 My brother takes beta seron shots every other night. He only has social security. In December, the MS patience assistance program stopped helping him. We scraped up $330.00 dollars to make his co-pay for his prescription for December, but for some reason, his co-pay for January is $2,500.00. He is traumatized. I am traumatized. He says he will just quit taking the medicine. I hope we can apply for Medicare, but I don’t know how long it will take or if he will qualify. He lives with me, so he only has to pay for his medicines, snacks, vitamins, medical supplies, his toiletries, and incidentals. I have no extra money. How long can he go without the beta seron until we can find some help. It may take a while?

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Comment on Late-breaking session at #MSParis2017 unveils advances in human anatomy, a new biomarker, and clinical trial results for Progressive MS by Jim Eddington https://drkarenlee.ca/late-breaking-session-at-msparis2017-unveils-advances-in-human-anatomy-a-new-biomarker-and-clinical-trial-results-for-progressive-ms/#comment-546 Tue, 02 Jan 2018 20:44:22 +0000 https://drkarenlee.ca/?p=1671#comment-546 We were promished more reaseach for pprms 7 years ago,Still nothing , but mumble jumble,.I’m sick of it please don’t tell us about more treatments fo rrms . Personaly I’m sick of it

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Comment on 2017 revisions to MS diagnostic criteria presented at #MSParis2017 conference by drkarenlee https://drkarenlee.ca/2017-revisions-to-ms-diagnostic-criteria-presented-at-msparis2017-conference/#comment-545 Tue, 02 Jan 2018 20:43:09 +0000 https://drkarenlee.ca/?p=1660#comment-545 Hi,

Thanks for your questions. The article which details the full list of revisions to the criteria is now published. You can visit the published article for more information: https://www.ncbi.nlm.nih.gov/pubmed/29275977.

-Dr. K

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Comment on 2017 revisions to MS diagnostic criteria presented at #MSParis2017 conference by D Johnson https://drkarenlee.ca/2017-revisions-to-ms-diagnostic-criteria-presented-at-msparis2017-conference/#comment-541 Fri, 15 Dec 2017 04:26:23 +0000 https://drkarenlee.ca/?p=1660#comment-541 Hi,

This is the only article I’ve seen naming two CSF specific O-bands for the substitution of dissemination in time. Is that confirmed? Also, do you know when the 2017 revision will go into effect? Thanks!

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