Comments for Dr. Karen Lee's Blog https://drkarenlee.ca An Inside Look at MS Research Tue, 31 Jul 2018 14:09:10 +0000 hourly 1 https://wordpress.org/?v=4.6.12 Comment on “Rewiring” neurons: how the brain copes with MS by drkarenlee https://drkarenlee.ca/rewiring-neurons-how-the-brain-copes-with-ms/#comment-627 Tue, 31 Jul 2018 14:09:10 +0000 https://drkarenlee.ca/?p=756#comment-627 Hi Brooke,

Thanks for your comment. Research is still in the early stages trying to identify what kind of rehabilitation/exercises would promote beneficial neuroplasticity. We do know that promoting plasticity may allow the nervous system to adapt to the changing conditions of the environment. However, there is also evidence to support that not all of the changes in brain activity may be beneficial. In fact, sometimes plasticity can also be maladaptive and contribute to sustained disability. A better understanding of effective rehabilitation approaches is needed that would promote plasticity and lead to improved recovery following a relapse.

-Dr. K

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Comment on “Rewiring” neurons: how the brain copes with MS by Brooke https://drkarenlee.ca/rewiring-neurons-how-the-brain-copes-with-ms/#comment-621 Thu, 19 Jul 2018 04:17:50 +0000 https://drkarenlee.ca/?p=756#comment-621 Late to the party on this one, but I was just searching on neuroplasticity for MS, and this came up…

Late last year, I had a severe flareup of my RRMS, which had me in the hospital for a while. At best, I was an EDSS of 6 — horrible balance, trouble walking, sometimes slurred speech. Massive brainstem lesion, adding to the scar tissue I already have at C6, further slowing transmission.

My formal physical therapy involved a lot of strengthening work, even though I chose to go to a hospital PT vs. a PT clinic (which I figured would be less holistic). While strengthening is definitely a necessary component, as one familiar with the success of neuroplasticity training, I was surprised it had not trickled down to neurorehab, short of single-leg, closed-eye balance work.

I am lucky to be both a bodywork professional and a physiology instructor, so I used both my PT exercises as well as my own skillset, and have rehabbed myself back to an EDSS of 2.0. I am able to lift weights 5-6 days a week! However, I would love the rehab community to adopt more neuroplasticity exercise. Is there any way to promote such a thing? Clearly, I’ve had success, and I would love for others to, as well. Thanks!

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Comment on 3rd Scientific Congress of the Progressive MS Alliance: Making a difference through rehabilitation and Symptom Management (Part 1) by drkarenlee https://drkarenlee.ca/3rd-scientific-congress-of-the-progressive-ms-alliance-making-a-difference-through-rehabilitation-and-symptom-management-part-1/#comment-620 Wed, 18 Jul 2018 13:07:21 +0000 https://drkarenlee.ca/?p=1822#comment-620 Thanks Micheline! We always keep the person affected with MS at the center of what we do so its great to see our hard work appreciated.

-Dr. K

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Comment on 3rd Scientific Congress of the Progressive MS Alliance: Making a difference through rehabilitation and Symptom Management (Part 1) by Micheline Dufour https://drkarenlee.ca/3rd-scientific-congress-of-the-progressive-ms-alliance-making-a-difference-through-rehabilitation-and-symptom-management-part-1/#comment-619 Wed, 18 Jul 2018 12:53:09 +0000 https://drkarenlee.ca/?p=1822#comment-619 I do agree that rehabilitation and exercises programs are needed to improve functioning when you have MS. I would badly need it to be able to stand up by myself and be able to go to the washroom or take a shower alone. This is the king of help I would need. Thank you for all the work you are doing to improve our life.

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Comment on Medical marijuana and MS: What does the research suggest? by Jamie Hans https://drkarenlee.ca/medical-marijuana-and-ms-what-does-the-research-suggest/#comment-613 Mon, 02 Jul 2018 08:48:19 +0000 https://drkarenlee.ca/?p=518#comment-613 It’s crazy that this miracle plant has not being legalised worldwide. With all the benefits research has proven it has, it’s a shocker.

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Comment on MS Society of Canada poised to feature research and researchers for May Awareness Month and World MS Day by Stacystone https://drkarenlee.ca/ms-society-of-canada-poised-to-feature-research-and-researchers-for-may-awareness-month-and-world-ms-day/#comment-606 Sat, 02 Jun 2018 05:59:16 +0000 https://drkarenlee.ca/?p=1742#comment-606 I am a regular follower of your blog. And the points you have mentioned over here are very essential in my point of view.

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Comment on Incidence and Prevalence: What do they mean, how new numbers are identified and why they are important? by drkarenlee https://drkarenlee.ca/incidence-and-prevalence-what-do-they-mean-how-new-numbers-are-identified-and-why-they-are-important/#comment-605 Fri, 01 Jun 2018 13:12:25 +0000 https://drkarenlee.ca/?p=1809#comment-605 Hi Jonathan,

Thanks for the feedback.

In response to your questions, here are my answers:

1. This data was previously reported based on several surveys that were developed through the National Population Health Study of Neurological Conditions to estimate the incidence and prevalence rates of MS in households and long-term care facilities. One of the surveys, the 2010-2011 Canadian Community Health Survey (CCHS), asked respondents if they, or members of their household had any one of 18 neurological conditions including MS. With this type of questionnaire, it is possible households over-reported MS (e.g. not diagnosed with MS but going through tests for potential MS).

2. The statistics are updated from what was previously reported in 2010-2011 using the national surveys. CCDSS identified the incidence and prevalence rates of MS using validated data from health care visits, allowing the CCDSS to utilize a more reliable method to determine the national estimates of MS in the adult Canadian population.It takes a few years for the PHAC to be able to gather information from all provinces and territories, analyze the data and then report the statistics. Moving forward, PHAC’s goal is to update these numbers on a more regular basis.

3. These statistics are very important for Canadians living with MS. These fundamental numbers form the basis for identifying the needs of people living with MS as well as the risk of developing MS. If there is a recognition that the number of Canadians living with MS is increasing, which it is based on these new statistics, then it will be important information that speaks to the need for more resources in the Canadian healthcare system, changes in policies and more programs to support this increasing population. Also, the if the incidence rates are increasing, which they are not, it would inform us for the need to look at changes in risk factors in the population. Knowing what the risk factors are for MS can then help is in our journey to find a cure.

For more information, you can also check out the MS Update.

-Dr. K

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Comment on Incidence and Prevalence: What do they mean, how new numbers are identified and why they are important? by Jonathan Allenger https://drkarenlee.ca/incidence-and-prevalence-what-do-they-mean-how-new-numbers-are-identified-and-why-they-are-important/#comment-604 Fri, 01 Jun 2018 02:13:17 +0000 https://drkarenlee.ca/?p=1809#comment-604 Karen,

Great post and thank you for the updated incidents and prevalence statistics for MS in Canada. A few follow up questions for you:
1) What methodology was previously used to determine the previously quoted incidence and prevalence rates for MS in Canada?
2) Why are we talking about updated statistics in 2018 that are from 3-4 years ago (2014-15)?
3) What do the changes in these statistics mean for Canadians impacted by MS?

Jonathan

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Comment on Getting personal with a promising treatment approach to MS by drkarenlee https://drkarenlee.ca/getting-personal-with-a-promising-treatment-approach-to-ms/#comment-601 Thu, 24 May 2018 13:56:50 +0000 https://drkarenlee.ca/?p=1430#comment-601 Hi Marc,

For information on participating in this treatment, please visit the Ottawa Hospital Research Institute website here.

-Dr. K

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Comment on Faces Behind the Science: Evelyn Peelen by Martin Matko https://drkarenlee.ca/faces-behind-the-science-evelyn-peelen/#comment-599 Tue, 15 May 2018 07:18:55 +0000 https://drkarenlee.ca/?p=1789#comment-599 Eliminating cause Symptoms of so called Multiple Sclerosis will End MS often when CCSVI is treated w/Venous Angioplasty SymptoMS often Ease/Disappear incl Fatigue, sleep apnea, gait, cognition urinary issues, ect Ect ECT! FACILITATE AND MAKE AVAILABLE CCSVI TREATMENT RESEARCH!!!!

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